About Me

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Virginia Beach, Virginia, United States
I am a wife,mother,and nana learning to live with a disorder called Chiari1 Malformation with syringomelyia & other disorders all related to the chiari.I traveled a long journey too find results and my wish is to help others find help thru my experiences.I have given up a career I worked hard at for over 3 decades, but the 1 thing that I lost, is I am unable to be the mother I had planned and should be to my daughters, and that by far is the greatest loss of all.I was happy to have validation but accepting limitations is difficult for one who was so active and independent and wanted so much more for my children, as we all do as parents. I made friendships that are more valuable to me than any pill. They make me smile, laugh, and cry,but most of all they saved me from the aloneness.My wish. after a cure is that someday I can turn to a neighbor, new friend, or even a medical professional and when I say I have Chiari the answer will not be "Chiari what is that?" Wellcome to my journey into discovering all I can about my disorders and try to bring awareness and maybe share a laugh with someone and let them know that they too will never have to travel this road alone.

Thursday, September 11, 2008

Some dura patches used in brain surgery recalled

If you have any concerns on the type of patch that was used on your surgery read this article and check with your surgeon to get the name of the patched used during your surgery.

2 comments:

lzwitty said...

Sheila,

Thanks so much for your comments on my blog. I really appreciate them! From reading your blog, you and I share a lot of the same experiences with Chiari! As to your interpretation of my Chiari-Picasso--you got a lot of what I had in mind. In addition, while I was drawing the back of my head, I put a pair of eyes back there as I now see everything in life differently since going through my experience. Also, I feel like sometimes, people see my "scar" before they really see me. One of my students looked at the art (not knowing I did it) and said, "this person feels trapped." I thought that was an amazing comment, too, as our illness does "trap" us to an extent, too.

Thanks again for your comments! Keep in touch!
Blessings~ Leslie

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