Dr.Oro blogs on wellshere a great neducal site,MUST READ.
About Me
- Sheila
- Virginia Beach, Virginia, United States
- I am a wife,mother,and nana learning to live with a disorder called Chiari1 Malformation with syringomelyia & other disorders all related to the chiari.I traveled a long journey too find results and my wish is to help others find help thru my experiences.I have given up a career I worked hard at for over 3 decades, but the 1 thing that I lost, is I am unable to be the mother I had planned and should be to my daughters, and that by far is the greatest loss of all.I was happy to have validation but accepting limitations is difficult for one who was so active and independent and wanted so much more for my children, as we all do as parents. I made friendships that are more valuable to me than any pill. They make me smile, laugh, and cry,but most of all they saved me from the aloneness.My wish. after a cure is that someday I can turn to a neighbor, new friend, or even a medical professional and when I say I have Chiari the answer will not be "Chiari what is that?" Wellcome to my journey into discovering all I can about my disorders and try to bring awareness and maybe share a laugh with someone and let them know that they too will never have to travel this road alone.
Monday, September 1, 2008
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4 comments:
Awesome site and im glad to have found you. Thank you so much for sharing your personal thoughts and opinions. God bless you and i will be thinking of you. Our son was born last december with a rare birth defect called esophageal atresia. I again want to thank you and you will be in my thoughts.
thank you and prayers to you and your family too any diorder is hard because we are labeled not normal, What is nowadays? The weaker are more soulful people to and they are awesome beings,
love to you all
the dunbar family
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