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| From sheilas family and stuff |
his book is on my list of favs and he will always be a great man.
Another great man's life cut short, we will miss you Randy, we know you are now one of the Angels.
About Me
- Sheila
- Virginia Beach, Virginia, United States
- I am a wife,mother,and nana learning to live with a disorder called Chiari1 Malformation with syringomelyia & other disorders all related to the chiari.I traveled a long journey too find results and my wish is to help others find help thru my experiences.I have given up a career I worked hard at for over 3 decades, but the 1 thing that I lost, is I am unable to be the mother I had planned and should be to my daughters, and that by far is the greatest loss of all.I was happy to have validation but accepting limitations is difficult for one who was so active and independent and wanted so much more for my children, as we all do as parents. I made friendships that are more valuable to me than any pill. They make me smile, laugh, and cry,but most of all they saved me from the aloneness.My wish. after a cure is that someday I can turn to a neighbor, new friend, or even a medical professional and when I say I have Chiari the answer will not be "Chiari what is that?" Wellcome to my journey into discovering all I can about my disorders and try to bring awareness and maybe share a laugh with someone and let them know that they too will never have to travel this road alone.
Thursday, September 4, 2008
A great Man, teacher, Father, and husband and he taught me about acceptance
his book is on my list of favs and he will always be a great man.
Another great man's life cut short, we will miss you Randy, we know you are now one of the Angels.
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4 comments:
Sheila,
I understand your pain and frustration over the feeling that you are a burden and you give less than you take from those who love you. But let me tell you my perspective on this (it took me a long time to get here)
Maybe you are a catalyst to help people grow and reach their potential. Maybe your children and grandchildren are going to be much stronger individuals BECAUSE of your struggle. Perhaps you are helping others learn tolerance, empathy, patience.
Sometimes, this is the only comfort I have. That maybe my struggle is helping someone else become a better person. I can hope.
love,
Holly
thanks holly that is a way better way to look at this and accept it.
love you
Sheila
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